mama whose curiosity knows no bounds

Posts tagged ‘attention deficit’

Long, winding road – my lupus journey #2

So my fatigue was not due to allergy.  Around the same time, I started to notice various symptoms.  Like:

  • drooping of my head/neck – in late afternoon, when I drive to pick up K and S from daycare, I noticed that I was unable to hold my head up.  I thought something might be wrong but again dismissed as being busy.
  • double vision – this scared me. I could see things far far away was one, but objects mid-to-short distance, say, 30 feet, looked double.
  • attention deficit – this was not new to me.  I always had scattered mind. By that time, I was tested for it, and result was “not ADHD, but not normal”.  Counselor diagnosed me with depression to explain. But by that time, it was getting worse.

Because my web search associated double-vision with scary stuff like brain tumor, I went to see my nurse practitioner.

She told me, “you know what? it is some thing called “old age eyes”.  Get a pair of reading glasses from anywhere, maybe Wal-mart and you’ll see it will be all gone.”  I also told her my extreme fatigue.  Since she knew K was autistic and could be very stressful, she told me that was typical symptom of depression and subscribed Wellbutrin for me.  Let me be clear, she was a wonderful, compassionate NP.  I really liked her.  But I couldn’t help but feel being dismissed as exaggeration.

Reading glasses of course didn’t help, although reading a very small letter was slightly better with it.  Of course, that’s the purpose of reading glasses!  But double vision continued.  So was fatigue.  I visited again and explained my symptoms.  She now realized it might be something serious – more specifically, multiple sclerosis, and ordered MRI and some blood tests.  Both turned out to be negative.  Including ANA, which is almost always positive for lupus patient.  This will haunt me for a long time.  She increased the dose of Wellbutrin XR to 450 mg, which was maximum.  It helped in that I became more alert and agitated, somewhat covering my fatigue and lack of concentration.

With frustration and the difficulty getting to see her – if you are sick and have to wait for 2-3 weeks, you will be frustrated! – I switched to see an MD.

To be continued….



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